October 5th and 6th, 2019 | Hilton New Orleans Airport 

Spina Bifida of Louisiana is excited to announce our second annual family conference! This conference will be for adults with spina bifida and parents of children with spina bifida. We will have Kids'Camp for children. Both children with spina bifida and their siblings can attend Kids'Camp. Kids'Camp will have 3 groups: 

Birth to 3 years old 

4 years old to 12 years old 

13 years old to 17 years old



This conference is open to all members in Louisiana and Mississippi. We will have two learning tracks running at the same time; one for adults with spina bifida and the other for parents of children with spina bifida. Sessions for both tracks will be geared toward each group. 

Registration Fees: 

Non-Member: $125 per person 

Member: Covered by Spina Bifida of Louisiana 

Vendor/Exhibitor: Contact Us for Vendor Packet (sbla@sblouisiana.org

Conference Registration Form: 

Online Form: Click HERE

Kids'Camp Registration Form: 

Online Form: Click HERE

To sign up to become a member, please fill out the form at


Hotel Information


You can make reservations for the hotel using our special link. Click HERE.

Conference rate is $109 per night + taxes. Spina Bifida of Louisiana (SB LA) will cover the hotel cost of Saturday night for all members participating in the conference. For members who live more than an hour away from the conference site, SB LA will also cover the hotel cost for Friday night. 




Please join us in thanking our wonderful community partners and corporate sponsors! By clicking on their logo, you will be redirected to their website.
Red Bug Hill Challenge

The Red Bug Hill Challenge is held in memory of Jordy Rourke, who died unexpectedly of a heart attack in May 2008 at the age of 20. Although Jordy was born with Spina Bifida and used a leg brace to walk, he led a full and active life.

PCG Medical

Catheter supply company locally based in New Orleans, Louisiana. Highest quality catheters and the best support available for critical urological supplies.

Children's Hospital New Orleans

Children’s Hospital New Orleans is a 229-bed, not-for-profit pediatric medical center offering a complete range of healthcare services for children from birth to 21 years.

Hanger Clinic

Hanger, Inc. is a leading national provider of products and services that assist in enhancing or restoring the physical capabilities of patients with disabilities or injuries.

Entergy Louisiana

Entergy Corporation is a Fortune 500 integrated energy company engaged primarily in electric power production and retail distribution operations in the Deep South of the United States.

Cure Medical

Cure Medical offers two areas of support to our community, with the intermittent catheters we manufacture, and also through the neurological research programs that we financially support.

Hollister Medical

We are dedicated to delivering the highest standard of quality in medical products, and each member of the Hollister team is committed to making a difference in the lives of people who use them.


Coloplast develops ostomy, continence, urology, wound and skin care products and services that make life easier for people with intimate healthcare needs.