Resource Guide E-Book

• Spina Bifida of Louisiana (Brochure) • What is Spina Bifida? (https://www.spinabifidaassociation.org/what-is-spina-bifida-2/) • Lipomyelocele (https://www.spinabifidaassociation.org/resource/lipomyelocele/) • Folic Acid (https://www.spinabifidaassociation.org/resource/folic-acid/) • Guidelines For the Care of People with Spina Bifida (Throughout the Lifespan) (https://www.spinabifidaassociation.org/guidelines/) • Latex List in the Home & Community (https://www.spinabifidaassociation.org/resource/latex/) • Hydrocephalus and Shunts (https://www.spinabifidaassociation.org/resource/hydrocephalus-and-shunts/) • Genetics & Spina Bifida(https://www.spinabifidaassociation.org/resource/genetics-spina-bifida/) • Symptomatic Chiari Malformation(https://www.spinabifidaassociation.org/resource/chiari-malformation/) • Urologic Care & Management(https://www.spinabifidaassociation.org/resource/urologic-care/) • Transitioning Urologic Care(https://www.spinabifidaassociation.org/resource/urologic-care-from-adult-to-child/) • Traveling with a Disability (https://www.spinabifidaassociation.org/resource/traveling/) • Depression & Anxiety(https://www.spinabifidaassociation.org/resource/depression-and-anxiety/) • Hypertension(https://www.spinabifidaassociation.org/resource/hypertension/) • Obesity(https://www.spinabifidaassociation.org/resource/obesity/) • Osteoporosis (https://www.spinabifidaassociation.org/resource/osteoporosis/) • Families Helping Families Centers (Throughout Louisiana) (undefined) • Medicaid in Louisiana(http://ldh.la.gov/index.cfm/page/220) • Medicaid Waiver Program - Louisiana (Home & Community Based Services) (http://ldh.la.gov/index.cfm/page/142) • Emergency Preparedness for People with Special Needs (https://www.redcross.org/get-help/how-to-prepare-for-emergencies/disaster-safety-for-people-with-disabilities.html)

• Welcome Letter (From Spina Bifida of Louisiana) (undefined) • Words of Encouragement to Expectant Parents(https://www.spinabifidaassociation.org/story/what-we-want-you-an-expectant-parent-to-know/) • An Expectant Parents Guide to Spina Bifida (https://www.spinabifidaassociation.org/resource/expectant-parents/) • NICU Experience Guide: Questions from Parents of Babies with Spina Bifida, answered. (https://www.spinabifidaassociation.org/resource/nicu-guide/) • Fetal Surgery for Spina Bifida (PubMed.gov) (https://www.ncbi.nlm.nih.gov/pubmed/23395140)

• Welcome Letter (From Spina Bifida of Louisiana) (undefined) • NICU Experience Guide: Questions from Parents of Babies with Spina Bifida, answered. (https://www.spinabifidaassociation.org/app/uploads/SBA-NICU-Information-Sheet-final.pdf) • An Expectant Parent's Guide to Spina Bifida(https://www.spinabifidaassociation.org/resource/expectant-parents/) • Early Intervention Services (EarlySteps Louisiana) (undefined) • Families Helping Families Centers (Throughout Louisiana) (undefined)

• IEPs vs 504 Plan: What's the Difference? (https://www.understood.org/en/school-learning/special-services/504-plan/the-difference-between-ieps-and-504-plans) • Education Issues Among Children with Spina Bifida (https://www.spinabifidaassociation.org/resource/education-issues/) • Contience Management in Schools(https://www.spinabifidaassociation.org/resource/continence-management/) • Learning Among Children with Spina Bifida (https://www.spinabifidaassociation.org/resource/learning/) • Maintaining Continence at Camp and Sleepovers(https://www.spinabifidaassociation.org/resource/maintaining-continence-at-camp-and-sleepovers/)

• Transitioning Into Adolescence(https://www.spinabifidaassociation.org/resource/transition-to-adolescence/) • Advocacy & Self-Advocacy • Legal Status in Louisiana (Age of Majority, Intradiction, Continuing Tutorship etc.) (https://disabilityrightsla.org/resources/legal-status-in-louisiana-a-guide-to-full-and-limited-interdiction-continuing-tutorship-representation-and-mandate-and-representative-payment/) • Sexual Health in the Spina Bifida Community(https://www.spinabifidaassociation.org/sexual-health-in-the-spina-bifida-community/)

• Health Care for Women(https://www.spinabifidaassociation.org/resource/health-care-for-women/) • Men's Health(https://www.spinabifidaassociation.org/resource/mens-health/) • SB-You: Get Fit and Stay Healthy (Webinar) (https://www.spinabifidaassociation.org/resource/sb-you-get-fit-and-stay-healthy/) • Pain & Spina Bifida Occulta (https://www.spinabifidaassociation.org/resource/pain/)

• Mississippi Parent Training & Information Center (MS PTI) (http://www.mspti.org/) • Mississippi Division of Medicaid (https://medicaid.ms.gov/programs/) • Elderly and Disabled Medicaid Waivers - Mississippi (https://medicaid.ms.gov/programs/elderly-and-disabled-waiver/) • Mississippi Department of Rehabilitation Services (Vocational Rehabilitation) (https://www.mdrs.ms.gov/VocationalRehab/Pages/default.aspx) • MS State Department of Health: Children & Youth with Special Health Care Needs (https://msdh.ms.gov/msdhsite/_static/41,0,163.html)